My Journey with Lyme Disease

The reason I even started this blog was to offer others suffering with Lyme Disease & Co-infections HOPE! Without hope we parish. I’m not a doctor and nothing I say is anything more than my own experiences and beliefs. This disease is merciless. It has many victims, many of which are still looking for answers as I did for 34 yrs. In 1971, when I was 13 I first became sick with this mystery disease. I went from doctor to doctor…..no one knew what it was. There were many guesses; leukemia, kidney disease, mono, mental illness….and on and on it went. This was my story until 2005.

In 2005 I became so deathly sick that I prayed daily for God to either heal me or take me. As you can see from my blog and my postings, I am an energetic 50 yr old woman. I love life! I love my family! I love my Saviour! But in 2005 I was lifeless; a living dead. I then requested a Lyme Western Blot test from Igenex and not to my surprise it came back positive, with a positive Ehrlichiosis also. On top of that through clinical diagnosis I was also infected with the “American Malaria”; Babesia and also with “Cat Scratch Fever”; Bartonella.

As I’ve said in some posts, I’d rather be playing with a pit viper than these infectious diseases. They are no respecter of person or age. They would just as soon kill an infant than a teenager. They are considered “Stealth” bacteria and protozoa. The Babesia is the protozoa.

In the past three years I have educated myself and had an open mind about this disease. Most people think a simple dose of an antibiotic (ABX) will cure it, but it won’t. This disease is not recognized as a disease. There is no diagnostic code. Insurance companies will not cover long term treatment. The CDC has it’s information in the dark ages. There are few knowledgeable doctors to treat. So, we took matters into our own hands as anyone does facing an incurable life threatening disease.

My first trial was with following Dr Lee Cowden’s protocol using “Samento”. I had some good results and it did give me some relief, but it wasn’t complete…at least not what he published before 2005. I followed this protocol for 1 yr. Early on we bought two pieces of equipment that we knew were going to be invaluable. A Rife Machine and an Infrared Sauna. The Rife Machine is a electro magnetic machine that emits frequencies. Every living thing has a frequency or vibration to it. It’s like when an opera singer shatters a glass. It’s like when an earth quake shatters a bridge. Lyme Disease and it’s co-infections also have life frequencies. There have been many researchers who have put together frequency lists of just about any bacteria or disease you can imagine.

I believe there is one way to live with Lyme Disease & Co. and that is with it being DEAD! During 2006 I played around with the Rife Machine but really didn’t like the side effects. You see when the bacteria is dead (any bacteria) it causes horrible symptoms, including brain fog, joint pain, muscle pain, chronic bone pain, visual disturbance, encephalitis, itching, hives, mysterious swelling, deafness, blindness, palsy…. and on and on and on it goes. So, the way most people like to live with Lyme & Co is to live in harmony. NOT ME! I will never live in harmony with this disease. So, in 2006 I played around with a few other remedies to find none of them helping. We found a wonderful Lyme Literate Doctor in August of 2006. He supported whatever alternative treatment I was willing to try.

Most of my improvement began in Jan 2007 when I was prescribed Armour Thyroid. I came alive. In addition I used the sauna everyday for 20 min’s at 125 F. I began consuming raw dairy which I’ll describe below. I began experimenting with doses of Cod Liver Oil. I used coffee enemas for pain and to cleanse my liver. I mostly rife weekly or bi weekly and experimented with food and supplements and did a lot of detoxing which if vital.

In the fall of 2006 we began to eat raw dairy. We had always eaten a pretty healthy diet, but we became very strict with our diet….no sugar, no wheat, no coffee, no fruit, no nothin! I was at that time “allergic” to eggs and dairy, which was proven by an IGg blood test. Upon starting raw dairy, I found that I couldn’t eat it either. Then I realized more specifically I was allergic to Casein the protein in dairy. In March 2006 I decided to try and heal my leaky gut. You see just about everyone has a leaky gut and due to my “allergies” I knew it was so. I started consuming plain raw butter and raw cream. Neither of them have much if at all any casein in them. I did this for three months. No problems. In fact my health began to improve. Then I tried Kefir. Kefir is a wonderful healing food. It’s an ancient food that the nomads drank as they lived in the desert with their camels and goats. It’s basically fermented milk with kefir grains that look very much like cauliflower.

Now the kefir. Still I had an asthma attack. So, I backed off the kefir and only took in about 1Tbsp at a time. I built it up and began to drink it with raw colostrum (the first milk). No asthma attack!!! I did this for another three months upon which I saw my doc. He was well pleased with what I had accomplished. Hippocrates said, “death begins in the gut”. I choose life….and I said, “life begins in the gut”. My doc wished that all his patients could get to this place of healing. Then in another 3 months I began to drink raw milk, which I haven’t been able to do my whole life without asthma. I’ve continued the raw dairy; homemade kefir, homemade yogurt, raw cheese. In addition we eat grassfed beef, soy free chickens, soy free everything since it’s highly GMO and allergic. We eat all organic veggies and grow most of it ourselves. We use herbs, which I’ll go into further below. We live very clean. No preservatives, no chemicals, no artificial anything.

When I also started “Rifing” in Jan 2007, I set up a schedule and I stuck to it. To this day I am still rifing and seeing great improvements. My herxing (die off) is less and less, my days of herxing are shorter. My brain began functioning again and miracles began to happen. I can’t explain it but it was happening. I could think again. My family was amazed. I still have what I like to amusingly refer to as “memory leakage”, but it’s so much less.

Due to my brain functioning again, I reread “Lyme Disease and Modern Chinese Medicine” by Dr. Qingcai Zhang. I tried to read it before but it didn’t make sense, but now it did. In Jan 2008 I started Dr Zhang’s protocol listed in the book. I ordered the products and have continued to do so for 4 months. I am seeing remarkable results. Dr Zhang and others now believe that in order to kill Lyme you must kill the co-infections first. With that, I am 99.99999999999% sure that old Bab’s is dead!!! The only other time I’ve felt this good was when I took Malaria med’s in India. Since they are sister diseases, and the same treatments are used for both Malaria and Babesia, I believe it is finally dead. Now the work of killing off all if not most of the Bb (lyme) and Bartonella and Ehrlichia. The remainder of the protocol will take a yr. When I finally did kill Bab’s I then realized that Bartonella was uncovered. The symptoms worsened and I began to rife more specifically for it.

I will continue to rife 1-2x month. I will continue to eat well and to begin to exercise again! I will embrace life and my God and my Saviour Jesus Christ. I will celebrate all the milestones in my life with JOY! And I will continue to pray for those who are suffering, including my own son.

This is my story. These are some of the tips that I’ve learned along the way.

1. Keep a diary…write everything down, what you take, when, how you felt…

2. Clean up your diet and lifestyle.

3. DETOX! Use a sauna or hot tub or hot baths w/ epsom salts & H2O2. Use coffee enemas.

4. Stick to a protocol for at least a yr.

5. Buy a Rife Machine.

6. Eat raw dairy, grassfed meat, soy free chickens and eggs, organic veggies, CLO, raw butter, no wheat.

7. Explore the world of herbs and their healing abilities.

8. Pray and meditate on the Bible. Prayer changes things. Draw near to God.

9. Learn about “Nourishing Traditions” and Weston A Price Foundation.

I pray that you will find hope. I pray that you will find a way out of this darkness and into the light. I pray that you will be brave enough to make some very hard changes in your life.

Disclaimer:  I am not a doctor nor do I pretend to be one.  If you need medical help please seek it.  The information offered on this blog is that of the owner and only her experience.  She does not offer medical advice nor will she give it.  Do the research and you too will find answers.  See the links offered on the home page for further information.

22 Responses to “My Journey with Lyme Disease”

  1. I found your website through a post on the NT group and I’ve really enjoyed looking around. I too am a Christian. In regards to lyme, I’m wondering if you’ve heard of the Salt/C protocol? I was a part of the support group for about 10 months and I heard some amazing stories. Do a yahoo group search for lyme strategies if you are interested. Safe, inexpensive and Mark who runs it is a great and guy with a lot of knowledge. I wasn’t diagnosed with lymes but checked it out in my search for anwers to long term problems. I did experience some sort of die off of parasites or something which was incredible. Carol

  2. Thanks Carol. I did try the Salt/C for a brief time, but found it incomplete. I really believe in herbs. They support the body while also killing the bacteria. Dr Zhang also believes in something no one else has addressed and that’s the inflammation that occurs when die off happens. That’s why there’s so many “auto” immune sypmtoms associated. The herbs for inflammation are helping greatly. Also some for supporting brain issues and herxing. All in all, I’m a good 90% recovered today!!! And that’s something to really ;) about! God is good Sister!

  3. Hi there! My name is Danielle and I was so excited to find the information in your blog regarding your journey with Lyme Disease. My husband, Kurtis, has just finally been properly diagnosed with this disease in September. It has definitely been a huge scary struggle. However, we are also both believers in Jesus and have become humbly aware and confident in Him that it will ultimately be Him who will bring about Kurtis’ healing from this treacherous thing. He has had it for about 12 years (with many mis-diagnoses). Most of his problem area is in his intestines on the constipation side. The pain and inconsistency in his health has made him unable to work for a year now. Kurtis also has been researching the natural foods/remedies in Sally Fallon’s NT book and Jordan Rubin’s “The Maker’s Diet” book for a few years now and seeing some benefit from some of the recipes. It was so encouraging to see you having success with your journey while relying on God and believing in the same nutritional ideas.
    We believe Kurtis is on the right track with what he has learned and he knows he needs more help with disciplining himself to the proper daily diet. We are seeking God’s wisdom in that area for sure and just doing our best to learn how to walk with Him through this. One of the areas we are hoping you can help with is if you have an efficient pain/diet diary spreadsheet idea that has been helpful to you…if you have any help for that area, please feel free to email me!
    Thank you for any help! We would greatly appreciate it!
    Danielle

  4. Hi Danielle,
    I am sorry for the suffering you’ve been through. We are still walking by faith with our 20 yo son. He is not doing well and it IS scary at times. Please pray for him if you think of it, his name is Ben. We would appreciate it so much…and I will be praying for all of you.

    Dr. Max Gerson researched and developed the coffee enema yrs ago…in 1800’s. He used them to treat his migraines. That’s probably the number one alternative pain remedy that most Lyme victims use. It takes my husband’s migraines away almost instantly….I did not really get much relief from pain. They did help with removing tons of toxins and that in the end is relief. I found as I was nearer to healing…and I’m almost there, I believe…I don’t need them as often now. My herxing is shorter and less intense. I still have tremendous bone pain from the Bartonella because it infects the bone marrow. But I know it is only a matter of time before it’s dead too! Praise God!

    The Lord really used this time to develop ears to hear and eyes to see in me. Of course I’m still being refined! But I’d always wait on Him for whatever I was to eat or drink or take. Just because it worked for someone else didn’t mean it was right for me. The one thing is that with this diet there needs to be no cheating!!!! Did you know 80% of our immune system is in our gut? That’s where healing BEGINS! I recommend kefir, yogurt and raw dairy if you can find it…look at the link for raw milk. I did no sugars or sweeteners, no fruit for a yr. Now it’s still no wheat, but oats are ok…soaked in yogurt overnight…something about phytic acid that Sally Fallon goes into….I eat them every AM with at least 3-4 TBSP of raw butter! Elimination is vital to recovery. I think there’s a book called, “Eliminate or Die”. The toxins build up in the colon and they are reabsorbed into the blood stream. I recommend getting all of Bryan Rosner’s books from lymebooks.com. You will be helped in there too. He suggests a Vit C flush to get bile flow which dumps toxins out. So, there’s many things to do. Also you could try lentils a couple times a week…they seem to really be a good fiber for me! ;) Then of course there’s always Psyllium & Bentonite for colon cleansing. The Bentonite will draw the toxins out, and the Psyllium will act like a broom and sweep them though. You may experience cramping at first but from what I’ve read and learned that could be caused by the work going on…just go slowly.

    The sauna also helped with pain. If there’s no sauna then use Epsom Salt baths (3 C) with 32 oz of Hydrogen Peroxide in warm water. Any form of detox is vital and will help w/ pain. Others don’t believe it but I also used for one yr hydrotherapy. HOT/COLD showers. You use hot hot hot for 30 seconds then cold cold cold for 30 seconds, do this for 6-7 min’s. It will really help! And if nothing else it will take your mind off of your pain! ;) Then of course there are herbs like White Willow for head aches. Dr Zhangs herbs address the inflammation issue and also there is a herxing herb from him. I only had discomfort in the beginning of each step. Otherwise they are working GREAT!

    I wish you the best. Sorry I have to say this: This information is only the opinion of the owner and not intended as medical advice. If you need medical help please seek it. Use your own digression in using any suggestions made. I am not a doctor nor do I pretend to be one…Yada Yada Yada.

    Love & prayers,
    Diane

    Another site of a Doc that’s been helpful and has recovered his body is Dr Ron Schmid…not a follower of Christ, but still has some helpful info. The most important thing he advises is taking Cod Liver Oil and high vit D raw butter at least 1 Tbsp of each every day. drrons.com I no longer use Jordan Rubin’s supp’s bc they contain mag stearate and other binders & preservatives and Dr Ron has info on that.

  5. Thanks for your encouragement and faith in God. God is in control of all things. He rains on the just and unjust, but is a rewarder of those who diligently seek him. I have a question…does Dr. Zhang’s protocol kill Bartonella (BLO)?

  6. Hi Jacob, Dr Zhang’s protocol is suppose to kill Bart. As we know these stealth bacteria are hard to kill. I started a new herb yesterday and am herxing A LOT! That’s a good sign, because I know it’s active and when it’s active it can be killed….a good time to rife.

  7. Hello,glad to have come across your blog. Have you tried Buhner’s and Cowden’s protocol ?
    Thanks .

  8. I’m sorry. I reread your original post and found you started off with Cowden’s protocol, .Well some other questions then. Where can I get info on Dr. Zhang’s book or protocol ? What frequencies do you use on your rife machine ,and how is cod liver oil beneficial for lyme.
    I’ve been on Doxy, IV Rocephin , salt/c,and now MMS. I am still not there at all. Do you think I should seriously consider rifing, I’m afraid of EMF’s.I’m confused.
    Thanks again .

  9. Hi Theresa, I’m so sorry that you are suffering. It can be very confusing and only you can know what to do. I tried many different protocols and probably did make some progress with each. However for us, we know that the rife actually shatters the spirochetes….no matter what strain it is. It is dead! You have to decide if it’s safe….it’s either the spiro’s or me???? For us it’s the death of spiro’s. I cannot give you medical advice. I can only tell you what I do and what my opinions are. Dr Zhang’s book is available on Amazon for under $20. His herbs are available at HepaPro. I would recommend Bryan Rosner’s book, Lyme Disease and Rife Machines…it put my mind at ease and gave me lots of answers…it is worth owning and worth paying for at lymebooks.com
    I do follow some of Buhner’s advice, but chose to follow Dr Zhang’s for a yr…I supplement with some of Buhner’s herbs. Coc Liver Oil is full of Vit A and Vit D…we need both. Actually a sick person cannot heal w/o both, at higher levels (info on Dom’s Kefir site)…they are great for the brain! along with high fat raw butter. Have you read any of Dr Ron Schmidt’s articles on the Weston A Price site? He healed with food…and recommends high levels of CLO and raw butter. There’s a lot out there. You have to sift it and pray about what to do. (You can find most of these things on my links) I hope that helps. It’s been a long journey but I’ve found most of my healing with following Nourishing Traditions dietary guidelines. Hope that helps.

  10. Thank you for posting a positive blog on Lyme’s. I only received my Igenex results last Thursday. Everything I have read is so bleak.
    I have had symptoms off and on for several years I think. Each thing was treated as a seperate issue. Then about two years ago, my scalp began burning and I began losing a massive amount of short term memory. I have had brief blindness in one eye and brief paralaysis in my right arm. I was dismissed as a stressed out mom and housewife.
    Last spring, we had a major mold intrusion in our home and I think that’s what pushed my autoimmunne system over the edge. We have seen two mold doctors across the country, with little relief. No one is as sick as I am, but my two children have symptoms.
    We have lost our home to the mold and most of the contents. Insurance does not cover mold. Now add Lymes! We have already had several stressful years trying to deal with our son’s OCD(could this be caused my Lyme?) Doctors in my area thing ticks can read state line signs and know not to enter Tennessee.
    Where do you get “Raw butter” and such? Any info would help.

  11. Hello! Thank you for recommending my books :-)

    Just wanted to note the website address does not have an “s” — it is http://www.lymebook.com .

    Your blog is great, I enjoyed poking around here!

    Take care,

    Bryan Rosner

  12. Hi Bryan & Jana,
    So glad you visited my blog. Bryan, your books have been an essential part of healing….and the good old rife machine! Don’t leave home without it! :D I fixed that link. Thanks.
    Jana, visit realmilk.com and you can find info on your state…then if that doesn’t help, find some yahoo grps and just ask…lots of folks will know. In Bryan Rosner’s books you will find info on the psych illnesses that are related to these infections. I hope you find you path of wellness…it’s a long journey. No quick fixes.

  13. I know there are several rife machines on the market. Do you have any suggestions?
    Thanks

  14. Greetings!

    I am blessed to see your spirit of positiveness and trust in the Lord, and your encouragement to all those who are suffering from Lyme.

    I have a friend struggle with Lyme since 1995, and hence very interested to find any info for him.

    He has been thtu many protocols, often all of them giving some relief, but on the long run, the effectiveness stops.

    He often asks me that he just wants to see one person who was totally cured from Lyme, just for encouragement that he can also one day. Somedays his faith is hit very down, and then there are other good days also.

    Would you know of any books/testimonies of any one who has totally been cured or overcome the the symptoms.

    Since he has been struggling for long time, he just wants to see someone with real overcoming effects.

    I am also going to print your story for him.

    Thanks and God bless
    Dan.

    For this God is our God for ever and ever: He will be our guide even unto death. Psalms 48:14

  15. Hi Dan, I’ll be writing a book sometime in the future. I know that the Lord wants me to, so it will happen. One chapter will be called, “When I woke Up!” That’s how it feels. Like I’ve been in a coma for soooo very long and it’s sooooo very good to be alive again. I really don’t remember the last time I felt this alive. Maybe when I was in my 20’s. I’m 50. Not only am I fifty, but I’m in menopause so you’d think that my life would be more difficult and I’d have less energy but it’s just not happening.
    I must say, that I believe with all my heart that we can heal or as I like to say recover from LD. And I believe that the very most important thing to do FIRST and formost is to heal the gut. It’s just not possible to recover from anything in my opinion without healing the gut. I will never go back to eating the old way when I’m feeling great. I know my body is only able to recover and be strong because my immune system is built up and my gut is healthy. The kefir is vital as well as the other lacto-fermented foods! Check out Weston A. Price Foundation in my links. It’s a good place to start.
    I just keep working on this. It’s a marathon not a sprint. Give you friend encouragement that he can recover his body and Jesus is the One who can lead him in the right way. The Lord strongly showed me that it was going to be with food. So, I had to keep praying for wisdom and keep asking for Him to show me and He did. The raw dairy was the big beginning to my recovery. Now I keep plugging away at the rife machine and taking Dr Zhang’s herbs and seeing such great recovery. I have to watch stress cause it can set me back months if I’m not careful…..so take it easy.
    We learned a lot from Bryan Rosner’s books. I think he is experiencing recovery too, but at what level I’m not sure. Doug from Bryan’s books gives testimony to complete healing for him and his family. Our son is 20 and he is very sick also. He isn’t disciplined right now and is struggling, but he is doing the rife after 1.5 yrs of ABX and he got worse. We keep praying and we have the faith to believe that his day of recovery is coming too!
    Be blessed and know that many are praying for those who are on this journey. God has so much to teach us.

    *This is strictly the experiences and opinions of the blog owner. No medical advice is given.

  16. Hi,
    Thanks for sharing your experience with other people . Long story short, I had bulls-eye rash when I was 19 & tested negative. I was healthy- played soccer in college, mountainbike, rock-climb, etc. Then later in life, 1 year after returning from Peace Corps, I started getting sick. It began as gastro stuff, then extreme weight loss, then adrenal/thyroid problems. Anyways, after a couple of years of numerous doctors & healers, I ended up testing very + from Igenex.

    I too am into Weston A. Price. I have gone to a couple of local chapter meetings.

    I have a couple of questions for you about your experience thus far.

    1.) When you started colostrum, was it capsule form or was it fresh from a raw milk source?

    2.)When you started the Armour thyroid, did you have any adverse reactions-headache, speedy, etc.?
    -I got really bad headaches from the Armour, that’s why I ask

    3.)I too have eliminated wheat(and mostly gluten) from my diet…I know you have soaked oats, do you do any other forms of gluten?

    4)Did you quit coffee because of the caffeine? Do you do any caffeine, green tea, yerba mate, etc.?
    I have quit coffee as well…although sometimes I will drink a cup of organic decaf. I also rarely have caffeine, but would like the have twig or green tea sometimes.

    5.)What has helped you the most for fatigue?

    6.)Have you ever tried kombucha? I have tried a few times, but get these mild headaches- assuming liver.

    Okay, so thanks a lot…I hope that wasn’t too many questions. I am not looking for medical advice, just am looking into other people’s experiences with this crazy lyme. BTW, as somebody who was once very athletic and active before lyme took over, it’s good to see your support for your son. It’s very hard when people your age(and older) can do physical things that you cannot do anymore. My family does not support me and that’s very hard.

    Thanks and peace,
    Nick

  17. Hi Nick, I’ll try to answer all your questions. And I’ll just add before I start …… this has just been my experience and these are just my opinions. This blog doesn’t give medical advice.

    Ok, now that that’s out of the way……
    1. I took raw colostrum from our farmer in a legal state to sell raw dairy. I’d have to go back and read my dairy, but I think I took it pretty consistently for 1 yr approx. I’d go through about 1 Qt every 3-4 days….$10/qt!

    2. I did not have any prob with Armour Thyroid. I played with the dose and finally took 30mg. I hate taking any Rx so I only stayed on it for 5 months and found some good Iodine and bovine thyroid from http://drrons.com. His office is very helpful. I get the same effect (I believe) from this. And there have been some days my husband asks me…What are you on???? I am so full of energy. BUT on days I’m tired, I rest. Resting is important. My job has been to heal. So that’s where my focus has been.

    3. I believe it’s been proven that oats aren’t truly a gluten food. But I do have terrible problems with wheat and tested IGg moderately positive to wheat & gluten. My doc even said, he didn’t know why but all his lyme patients can’t eat wheat. I’m still wondering about the soaking of the grains and breaking down the phytic acid like Nourishing Traditions recommends. I do soak my oats and they are delicious and I don’t have any problems with it. Since I’ve healed my leaky gut and can do dairy and eggs which were NEVER eat again on the IGg, well, it’s worth a try with it done the right way.

    4. I quit coffee bc the caffeine plays havoc on the adrenals. My adrenals I think were pretty dead. But no longer. I do LOVE a wonderful cup of black tea and allow myself a cup every so often. I have just started drinking Dandy Blend which is ok. I’m not a huge fan of chickory, but it’s a good alternative and is full of nutrition. I try as you know with WAP, to get the biggest bang with each bite. I did cut out all sweets for over a yr. Then a friend told me that he tested his blood sugar when eating raw honey and it had no effect. I’ve been using raw honey for about 6-7 months and no problems. It has to be truly raw honey.

    5. I can’t really point to one thing for fatigue. It’s been the almost total healing at this pt. Since killing Babesia, I feel so healed. Bartonella is still bugging me. After sitting for a while it’s painful to stand and I look like an old lady all doubled over, but after I get the kinks out I’m ok. I work all day now and I just don’t have very many bad days anymore. Rifing gives me a day or rather that day of herxing, but then it’s over. Since they are so much less, I feel like I can rife more often and longer and kill, kill, kill! I keep changing my frequencies and attacking all the infections. Some work better than others, but they work! I also listen to my body extremely well and will rife accordingly. If it’s active then it’s killable.
    If I had to pt to something that has helped with fatigue, I’d say it is the Iodine and Thyroid. But also killing Bab’s.

    6. I did do Kombucha for 5 months BUT, I finally realized after 5 months (ok, I’m slow) that it was what was causing me to have asthma attacks. I guess I was allergic to some “mold” or yeast in it. I finally threw it all in the compost and have not had any problems since. I did love the taste. I’m not sure that it really made a difference.

    The things that have made the biggest difference in my opinion have been Kefir, raw butter, rifing, Dr Zhangs herbs, Iodine/Thyroid and all the nutrient dense foods and rifing. Finding WAP has been life changing. (have you ever read Dr Ron Schmidt’s article on WAP?) We will never go back to any other way of eating. We only eat farm fresh and local. I haven’t been to a big box grocery store for over 3 yrs. The biggest down side to that is that I have gained weight. But, with menopause and being a living dead for so long, the inactivity didn’t help. I was training for a marathon when I got deathly sick. So I understand how you feel. Maybe I’ll get it back…..but as I look at it now….I’m alive. So what if I weigh 20 lbs more. I’m alive!!!!!! Our son has experienced much of what you have. He says people think he’s just lazy. He’s truly struggling right now, but he has to own his own recovery. I’ve wanted to do it for him for so long, but I can’t. I’ve asked God to give it all to me, but He hasn’t. So Ben has to take this journey for himself….Did you see the post that he hiked the AT for 4 days. It was truly a miracle. I’m hoping that he screamed right back at this disease that it’s can’t have him…I sure have done that many times. I refused to give up. Now, I’m so glad I kept pushing on. Onward and upward.

    Dance on!!!!!!! Hoping you find your way on this journey….I know you will. Just don’t give up. It’s a marathon not a sprint!

    God Bless!

  18. Nick, I forgot to mention that I also did some heavy metal chelating. I noticed that my son and I both got extremely sicker after we had immunizations to travel overseas on missions trips. He only got a tetanus, but I got a slew of them to go to India. I believe they weakened our immune systems and we got sicker and sicker. At which pt I was near death after returning from India in 05.
    I did some serious chelating. I had all my amalgam fillings out which totaled over 40!!!! I still have 3 but have wanted to get better before those come out. I’ve had heavy metal testing done and I have had tons of mercury, lead, and arsenic.
    I think for about 1 yr I took 900mg of Alpha Lipoic Acid split into three doses. And I capsuled my own Chlorella from Mountain Rose Herbs (in my links). about 6 capsules of Chlorella. When I did start the Kombucha I did chelate in my mouth. I had a terrible metal taste coming out of my gums. I’ve also had this after rifing in the past and drank Chlorella to rid of it.
    I just wanted to make sure I added this since I believe chelating from heavy metals is vitally important as well but go slow. Dr Klinghardt addresses this well (also in links). I believe if heavy metals aren’t addressed then you may not ever get past a certain pt of healing. Just my thoughts! No medical advice given here, only my opinions!!!! :D
    Hope this helps.

  19. [...] My Journey with Lyme Disease [...]

  20. I have been interested in raw dairy but very afraid to try it. I figure if they can find Bb in breast milk and other fluids then why not dairy, and how would you know if your raw milk had any of them?
    My 6 year old son and I both have been diagnosed with Lyme and I don’t see a lot of choices of treating, Mine has been ongoing for 15 years, and last fall his symptoms began 7 days after we found a tick attached and had difficulty removing the small tick. I am wanting to try natural approaches as even though he was treated aggressively with antibiotic by a LLMD he seems to be having some relapse in symptoms. I am at a loss and fear any long term antibiotic use. I feel torn and frustrated. I know what it is like to be untreated and misdiagnosed and do not want him to lead the life I have had to endure.

  21. Thanks for sharing this! I eat Traditional foods and avoid chemicals, too. I use a Zapper, which is a similar idea to the Rife Machine–though not as expensive. I’m still trying to recover–I go up and down so much. I’ve just hit 5 years of living with Lyme. I want to be free so badly! I am a Christian, but I find it’s been so much harder to connect with God–I think it’s brain fog.

    Oh, one thing that helps me is an exercise called T-Tapp. (I explain about it more on my blog if your interested.) I can’t do much exercise, but I can do a modified version of T-Tapp and it really helps.

    But it is hard to keep up the fight for so long! Sigh.

    Thanks for your blog.

  22. Joy, when I was nearly dead, my brain was so messed up that I couldn’t pray, talk or think….but I literally cried out to God and all that I COULD do was quote scripture! Now that truly is the work of the Holy Spirit. God will meet you where ever you are…when He is all you have He is all you need. God will lead you the way you should go.

    This journey hasn’t been perfect. My “good” days out weigh my “bad” days by a long shot now. I do believe that the Rife Machine is much more specific than the Zapper. But I do understand the financial basis.

    I will look at your blog and see what T-Tapp is. The one exercise I get now is hard work…my arm muscles are strong again, but my feet still hurt sooooo much that walking hasn’t been possible YET! TTT Things Take Time!

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